Who would have thunk that something as little and seemingly insignificant as one's Eustachian tubes would generate so much joy. Well, they have in my case.
I had completely given up on my sad little Eustachian tubes but I just found out from my ENT that the tube in my right ear has gone the way of the Dodo, and now while I enjoy the sunny world of my most therapeutic place on earth, my second ear is fixing itself up. I can once again whistle out my left ear (the one that still has a functioning tube left in the eardrum) which means that my Eustachian tubes are no longer inflamed shut... a condition I was certain would be with me for the rest of my life. The joy from this one turn of events is so tremendous and a tiny little sign that things are moving in the right direction that I've been so happy and not focusing on the horrible feeling of trying to get of the prednisone.
I'm still at 6mg about to go down to 5-6 alternating in about a week and I dread the next phase of feeling like a useless bag of poo, however I am treading in the pool of joy over the Eustachian tube development...and did I mention I can whistle out my ear... how's that for a killer party trick.
Wegener's Granulomatosis. A rare auto-immune disease affecting 1 in 30,000 to 40,000 lucky winners. I'm one of those winners. Diagnosed in May 2010, life has changed dramatically in some cases for the worse and in some for the better. This is where I ramble on about my observations with this new friend called Wegener's - which makes me a Weggie (pronounced 'weg-ee')
